News
/ Forschung
Publication: "Defining the noma research agenda"
A new publication by Swiss TPH and partners defines a global research agenda to tackle noma – a devastating and life-threatening disease mainly affecting children living in extreme poverty. The publication draws on the outcomes of a symposium organized by Swiss TPH and the Noma Survivors Association Elysium, which brought together more than 100 experts, noma survivors and public health stakeholders from around the world. The findings mark a major step in translating the recent WHO recognition of noma as a neglected tropical disease into coordinated research and action.
• A 1-day symposium brought together over 100 individuals with lived experience of noma,
expertise in neglected tropical diseases, and public health, including researchers, health
advocates, and clinicians. The involvement of noma survivors was invaluable and added an
important perspective in defining the research agenda.
• The most pressing research needs identified were:
○ Clear case definition of noma
○ Early case detection and robust surveillance
○ Psychosocial and economic impact of noma
○ Decision support for diagnosing acute necrotizing gingivitis and associated antibiotic
regimen(s) with treatment duration
○ Deeper understanding of risk factors and social determinants
○ Identification of effective information, education, and communication strategies
○ Effectiveness of surgical services
○ Testing decentralized follow-up for patients
• An important conclusion was that noma research and control activities must be integrated
across sectors and disciplines, such as neglected tropical diseases, oral health, nutrition, and
child health programs including immunization.
